My Rainbow has Faded

I feel not so “on top of the world” today. My body hurts and aches all over although I have already taken my pain meds. To go along with that, I have just discovered a large knot type thing in the roof of my mouth that does not feel too pleasant. I am hoping that disappears in a timely manner! It is really interfering with my lunch! I have been beyond positive with all this stuff from the very beginning! I was all non-chelate on the way to the hospital and all through my stay. I was even all peppy about getting my pretty red hair shaved, but I guess I do not feel like being too positive today. And frankly, I think that is just fine. Right?

I had my fourth dose of Chemotherapy yesterday. We left Shubuta at 8AM, and drug back in a while after 8PM last night. Everything went great though. I had to receive a shot at the end of treatment to boost my white blood cell count which hurt like hell, but I guess that is just part of it. I cannot recall the name of it at this time, but it costs between $3,000-$9,000. Can you believe that?! A little ole shot costing that much money- it’s absurd! Oh well, I have arrived to the conclusion that Joseph and I will be paying medical bills for the rest of our lives. That shot will just have to fit right in with all the others I suppose. The day nice though. It was beautiful outside! I froze in the waiting room, and then in the Chemo room. The warm blankets they bring you are just divine! Oh, and for some reason we have all been confused. I, along with everyone else, have been under the impression I would only have to receive eight rounds of Chemotherapy. Wrong- As of right now, I will receive sixteen separate treatments. Apparently, two “doses” is equivilant to one “cycle”. Anywho- I am supposed to get a PET Scan after the eighth dose to check on how the tumors are. On the way home we ate at Golden Corral; quite a few people had suggested it, and I just was not sure what my taste buds were wanting. I was not impressed with anything besides the salad bar. So, I know where I will not be dining again.

On a brighter note, I will end with something that always makes me smile, Joseph. My sweetheart of a husband is not able to go with me to my treatments anymore. Someone has to stay around here and take care of our restaurant I suppose. I know he may never admit it, but I am willing to bet he wants to be there with me as much as I want him to be there. I know there is really nothing he can do for me during the waiting, and the treatment itself, but I just hate to be away from him for long! I am thankful to have such a wonderful husband like him. It is incredible to be able to share each new day of my life with my best friend and soul mate.